shwachman.org Home - Shwachman-Diamond Syndrome

What is Shwachman Diamond Syndrome?

Shwachman Diamond Syndrome (SDS) is a rare genetic disorder. SDS affects many organs in the body and the symptoms may vary from individual to individual.

The primary features of SDS include: bone marrow problems (leading to inadequate production of some types of white blood cells), a defect in the pancreas (leading to difficulties in digesting food), skeletal abnormalities, and short stature. Other, secondary, features may affect some but not all people with SDS.

People with SDS are at risk for serious, sometimes fatal, complications such as severe infections, acute myelogenous leukemia and bone marrow failure.

SDS Canada’s Picture Gallery

Camp Quality is a non-profit, volunteer organization that, in addition to our signature week-long camping experience, provides year-round support for children with cancer (receiving treatment or in remission) and their families. Camp Quality applications are being accepted throughout the country.

Click here for the applications forms.

Camp Sunshine provides respite, support, joy, and hope to children with life-threatening illnesses and their immediate families from around the world through the various stages of their journeys. The year-round program is free of charge to all families, and includes 24-hour onsite medical and psychosocial support. Every two years, Camp Sunshine hosts “Shwachman-Dimanond Syndrome” week. Stay tuned for the 2016 camp dates (to be announced in Spring 2016).

You Can Make A Difference!

With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.

Please click here to access our donation page

donate-now

Register a SDS patient.

Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.

Recent Facebook Posts

For families in the GTA area, here is a great family day session being offered by SickKids Hospital on April 14th!

4 likes, 0 comments ⋅ 4 months ago

The Leukemia & Lymphoma Society of Canada

Intéressant! Webdiffusion gratuite au sujet de l’Immunothérapie pour ceux/celles intéressés.

0 likes, 0 comments ⋅ 6 months ago

Are you or a family member interested in getting involved with SDS Canada? We are always looking for volunteers for special projects and for the board of directors. Message me for details! Meetings are by conference call so you can participate from anywhere! Êtes-vous intéressé à vous impliquer avec SDS Canada? On est toujours à la recherche de bénévoles pour des projets spéciaux et pour le conseil d’administration. Les reunions sont tenus par appel conférence, donc vous pouvez participer..

4 likes, 1 comments ⋅ 9 months ago

Find us on Facebook